Patients

Mari Carmen is the older sister of patient Juan Manuel, she takes care of her brother along with his wife. He was diagnosed with ALS in February 2020 and since then he has followed a clinical trial that includes Ketas (Ibudilast) which is not yet approved in Spain, where Juan Manuel lives.

Mislav was diagnosed with Grade II astrocytoma, a type of brain tumour, in 2018 and has struggled with the Croatian healthcare system to obtain a treatment, Fycompa, which was not approved in Croatia. TheSocialMedwork was able to help him access the medicine and he is now one of the patients that we are happy to not have anymore: the hospital where he is being treated has approved the import and treatment of Fycompa to him for free.

Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure.

Our logistics team is responsible for delivering medicines to patients anywhere they may be. Every medicine is treated with extra care to ensure its safe and timely delivery.

When our patients submit an inquiry for a medicine, they are then personally contacted by one of our Patient Support team members who assist them through the entire process of ordering, sourcing and delivering their medicines.

Here are some frequently asked questions and answers that touch on important COVID-19 related updates.

After submitting a request and receiving a quote from our Patient Support Team, patients often have many questions regarding the price that they receive. In this article, you can find a breakdown of the total cost of a medicine we are supporting you to access in addition to resources on how you can possibly get it reimbursed.

In order to help you expedite the request process with us, we put together a quick prescription guideline.

As a pioneer of a completely new type of global service, we understand that trust, security and credibility are paramount–especially when paying for medicines which are essential and often the only treatment option available. There are an increasing number of scam websites and we ourselves have been the subject of one such scam. In this article we’ll give you tips on how to spot these fakers.

I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

After 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

Downloadable fact sheet answering the most common question TheSocialMedwork asked by healthcare providers.

In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

Realistic new year's resolutions for lasting results!

Doctors hold the key to access new medicines.

How we find and ship medicines on behalf of patients.

Alexandra was lucky enough to be on a clinical trial of the new migraine treatment erenumab (Aimovig) but couldn't access the medicine afterwards until she found TheSocialMedwork.

This is a personal account of Zoran, a client of TheSocialMedwork's who made it his life to help raise awareness of amyotrophic lateral sclerosis (ALS) in Bosnia after his own diagnosis.

Understand why approval doesn’t necessarily mean availability and what you can do if a medicine is approved, but not available in your country.

New research shows the benefit of eating fresh fruit on colon diseases like IBD.

"I heard by chance about a new clinical trial for migraine (for the substance that would become Aimovig) on the radio and the doctor encouraged patients to write to him to see if they were eligible candidates. So I did write and they accepted me for the trial. This trial was going to be 18 months long."

You might have heard about a new medicine that’s just been approved to treat migraine. Here’s what you need to know.

Michel has chronic migraine and shares his experiences seeking a treatment that works and his advice for other migraineurs. Image: stock - Michel wishes to remain anonymous.  

Find out about what it means to order and receive temperature-controlled medicines.